Aafke Steenhuis was the featured quilter in this year’s Tompkins County (NY) Quilters Guild show. That ordinarily wouldn’t be mentioned on the website targeted to advocates in the cancer world. What’s noteworthy is that many of Aafke’s quilts relate to cancer, often depicting cancer cells with remarkable accuracy. It’s noteworthy that advocacy takes so many…
This workshop workshop provides a forum for collaborative and productive multidisciplinary discussions to advance the understanding of the regulatory and scientific issues surrounding the use of patient-reported outcome (PRO) measures in cancer clinical trials. Patient advocates Patty Spears and Jane Perlmutter and are among the presenters. Read the description with agenda and speaker biographies attached
This is an excellent and clear description of genetics vs genomics in the cancer world. “In this episode of the No One Missed: Biomarker Testing in MBC series, watch Jenny Burkholder, patient advocate and podcast host, discuss the concept of precision medicine with Dr. Mehta, MD, of MD Anderson Cancer Center, the essential differences between…
Rose Kushner a Maryland journalist and mother — was consistently certain her next article would be her breakthrough piece. She never dreamed it would be breast cancer that made her and her work known to the world. Author of seven books on the topic of breast cancer, Kushner’s work affected changes in laws and medical…
Join our fierce team of Drs. Ellen Landsberger and Jill Tirabassi, Victoria Goldberg, Judy Perkins, Lynda Weatherby, Martha Carlson, Ashley Fernandez, Alexis Desai, Melanie Sisk, Gwendolyn Boyce, and Abigail Johnston, Esq. as we share stories, insights, and expert guests, all while making this serious topic a bit more entertaining. Think of us as your co-stars…
Many patients are using large language models, or LLMs, like OpenAI’s ChatGPT, Anthropic’s Claude, and Google’s Gemini, to interpret their records. That help comes with some risk, though. Physicians and patient advocates warn that AI chatbots can produce wrong answers and that sensitive medical information might not remain private. Read more on NPR.