Lived experience matters: patient engagement improves cancer care, research (Fred Hutch)

Luisa Fioretto, MD “As a medical student, I believed my role was to cure disease. However, after graduation, I found myself meeting people with all their burden of emotional and psychological complexity. While I was listening to them, I quickly realized that I was becoming part of their journey. In oncology, this became a personal encounter between…

Being a patient research advocate was never something Brittany Lee imagined for herself. After two cancer diagnoses, a debilitating muscle disease, and the loss of close friends, she discovered that advocacy was not only a way to process her own experience but also a way to change the future for others.  More

Stacey Tinianov, Executive Director at Advocates for Collaborative Education, shared a post on LinkedIn by Advocates for Collaborative Education, adding: “Fabulous insights and guidance from this amazing team of advocates on how to build an advocate-centric research lab. Key items included: Read the entire post from OncoDaily.

Rose Kushner was a pioneer in bringing the patient’s voice into cancer care and is often thought of as the individual who started the movement that is now known as cancer advocacy. Barron Lerner published an article about her life and legacy, No shrinking violet: Rose Kushner and the rise of American breast cancer activism….

Barbara Bigelow recently met with Senator Elizabeth Warren to talk about clinical trials and to express her concerns about cancer research being held up by the government shut down and the current political environment.

How do you advocate?  Are you compensated for your time?  Where do your short and long-term advocacy interests lie? Advocates for Collaborative Education is interested in gathering a better understanding of the cancer advocacy community’s expertise, related compensation experience, current and future advocacy interests. We know that advocates are generally underutilized in research and definitely…