The varied activities of ACE Members
What do advocates do?
That’s not an easy question to answer because we’re all so different and we’re engaged in such a wide range of activities.
Over the months ahead, we will highlight our members and these these different roles.
Our goal is to help new advocates understand some of the possibilities to help get them started in their own advocacy careers.
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Finding Your Lane: How JJ Singleton Turned Survival into Impact and Changed the Face of Cancer Advocacy
Tim McDonald (an advocate himself) conducted this terrific interview with colorectal cancer survivor JJ Singleton. The article originally appeared in Tim’s substack and caught our eye.
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Onward!! (by Jo Lynn Collins)
ONWARD!! Jo Lynn Collins It will be 7 years next month since my diagnosis of Stage 4 Metastatic Breast Cancer. Median life expectancy is around 3 years, and it never escapes my attention how fortunate I am to have lived beyond those statistics. That being said, the numbers are a bit outdated and don’t accurately…
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Advocate Spotlight: Donna Short
Location? Brookfield, CT via Maplewood, NJ and Memphis, TN but originally from Little Rock, AR What’s the primary focus of your advocacy? I try to use all the skills I have honed over the years to help others – relationships with KOLs, insight into pharma and biotech companies, and my passion for beneficial change which…
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Advocate Spotlight: Hillary Andrews, PhD
Name: Hillary Andrews, PhD Location: Northern Virginia What’s the primary focus of your advocacy? Research advocacy – developing data that supports policies to get better drugs to patients faster as well as connecting advocates and patient advocates to improve research When and how did you get started? During my postdoc at Georgetown, my best friend…
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Advocate Spotlight: Bob Riter
Name: Bob Riter Location: Ithaca, NY What’s the primary focus of your advocacy? Research Advocacy and Patient Support When and how did you get started? I was diagnosed with breast cancer in 1996. I became involved with the local cancer support organization (then known as the Ithaca Breast Cancer Alliance and later renamed as the…
