What’s New?

Here’s what is going on in the Advocate Collaborative right now

Are you attending and/or presenting at an upcoming conference or workshop that might be of interest to other ACE members. If so, please let us know so that we can spread the word!

ACE Speaks on Bidirectionality of Social Media at COSMO In the last month, ACE spoke on a panel at the 2nd Collaboration for Outcomes Using Social Media in Oncology (COSMO) conference in Providence, RI on the bidirectionality of social media. Panelist was Stacey Tinianov and ACE members Allison Rosen, Ginny Mason, and Donna Short were in attendance at the meeting. Board member Dr. Maryam Lustberg also presented at the meeting.  

Stacey Tinianov presents poster, Measuring What Really Matters: Advocacy-Led Co-Creation and Accrual of a Pan-Cancer QoL Survey, at the ASCO Quality Care Symposium on behalf of ACE collaborators including Jill Feldman, Dimpy Shah, Kelly Shanahan and Janice Cowden (Click here to see the poster.) This poster focused on the co-creation methodology used when designing, developing, and deploying the More Than a Diagnosis: A Quality-of-Life Survey for Individuals with a Diagnosis or History of Cancer.

ACE Working Group Meetings

Research Advocacy

Improving the way that advocacy and advocates are brought into the research process, interacting with research content and collaborators, sharing leading practices across cancer types. Led by Gitte Joergensen

meets the 4th Monday of every month @ 2pmPT / 5pmET 

Patient Advocacy

Sharing leading practices on direct patient support, education, resource availability, and representation. Led by Roberta Albany and Rod Ritchie

meets 4th Wednesday of every month 2pmPT/5pmET/8amAEST

Metastatic Advocacy

Sharing leading practices in metastatic advocacy work, identifying gaps and potential solutions across all types of advocacy to benefit those living with metastatic cancer. Led by Barbara Bigelow

meets 1st Thursday of every month @ 2pmPT / 5pmET

Communications

How we talk about who we are, what we are doing, and how to get involved; social media; website; blog; etc. Led by Allison Rosen and Bob Riter

meets the second Monday of every month @ 4pmPT / 7pmET

Policy Advocacy

meets: TBA

Would you like to join one of our working groups? We’d love to have you! Please contact us to volunteer or for more information.

Advocate Spotlight Blog