Rose Kushner was a pioneer in bringing the patient’s voice into cancer care and is often thought of as the individual who started the movement that is now known as cancer advocacy. Barron Lerner published an article about her life and legacy, No shrinking violet: Rose Kushner and the rise of American breast cancer activism. Every advocate should read it.
ACE Member Meeting. May 26, 2026. 6:00 pm. Pharma is big business structure. How to understand the layers, the emotional intelligence needed to navigate the waters, and the value you bring to the table. Where do you as an advocate fit into their big picture and how to maximize that well. Donna Short is a…
ACE Meeting. May 21, 2026. 1:00 pm ET. An introduction on who KENCO is, why KENCO was formed, a description of the model and it’s unique strengths, how it works, challenges, achievements and impact, and lessons for other countries. Prisca Githuka is a triple-positive breast cancer survivor and a passionate advocate for cancer awareness, survivorship…
ACE Meeting. May 19, 2026. 6:00pm ET. After cancer treatment, focusing on your overall wellness can help you feel stronger, regain control, and improve your quality of life. Many people experience side effects like fatigue, pain, stress, or trouble sleeping. Still, healthy habits such as eating well, staying active, taking supplements, and getting enough rest…
ACE Meeting. May 5, 2026. 6:00pm ET. Allison Rosen will cover the topic of clinical trial cooperative groups, starting with what they are, why they exist and the role advocates play in the various groups. I will briefly touch on the roles advocates play in these groups such as trials design, protocol development, consent and…
ACE Meeting, April 23, 2026, 1:00pm ET, 10:00am PT. Presentation by Mary-Gloria Orji. The topic is what it is. The stigma we face while going through cancer in my country and how people believe you must have done something wrong to offend God which is why you are being punished. Mary-Gloria Orji is a passionate…
ACE Meeting, Thursday, March 26, 2026, 1:00 – 2:00pm ET. Presentation by Stef Gayhart. Trauma-Informed Care is a conceptual framework that can be embedded into practiceto enable people and organizations to become aware of and interact with others in away that takes into account each individual’s potential traumatic history. We will brieflydiscuss the history of…