Barbara Bigelow recently met with Senator Elizabeth Warren to talk about clinical trials and to express her concerns about cancer research being held up by the government shut down and the current political environment.
Here's More Advocacy in Action
How to work with Pharma (Donna Short)
ACE Member Meeting. May 26, 2026. 6:00 pm. Pharma is big business structure. How to understand the layers, the emotional intelligence needed to navigate the waters, and the value you bring to the table. Where do you as an advocate fit into their big picture and how to maximize that well. Donna Short is a…
KENCO in Kenya (Prisca Githuka)
ACE Meeting. May 21, 2026. 1:00 pm ET. An introduction on who KENCO is, why KENCO was formed, a description of the model and it’s unique strengths, how it works, challenges, achievements and impact, and lessons for other countries. Prisca Githuka is a triple-positive breast cancer survivor and a passionate advocate for cancer awareness, survivorship…
Wellness after Cancer (Judy Fitzgerald)
ACE Meeting. May 19, 2026. 6:00pm ET. After cancer treatment, focusing on your overall wellness can help you feel stronger, regain control, and improve your quality of life. Many people experience side effects like fatigue, pain, stress, or trouble sleeping. Still, healthy habits such as eating well, staying active, taking supplements, and getting enough rest…
Clinical Trial Cooperative Groups & the Role of Patient Advocates: Improving Relevance, Access, and Outcomes in Oncology Research (Allison Rosen)
ACE Meeting. May 5, 2026. 6:00pm ET. Allison Rosen will cover the topic of clinical trial cooperative groups, starting with what they are, why they exist and the role advocates play in the various groups. I will briefly touch on the roles advocates play in these groups such as trials design, protocol development, consent and…
“Your Sin Caused You to Have Cancer” (Mary-Gloria Orji)
ACE Meeting, April 23, 2026, 1:00pm ET, 10:00am PT. Presentation by Mary-Gloria Orji. The topic is what it is. The stigma we face while going through cancer in my country and how people believe you must have done something wrong to offend God which is why you are being punished. Mary-Gloria Orji is a passionate…
Using Trauma-Informed Care Practices in Patient Advocacy (Stef Gayhart)
ACE Meeting, Thursday, March 26, 2026, 1:00 – 2:00pm ET. Presentation by Stef Gayhart. Trauma-Informed Care is a conceptual framework that can be embedded into practiceto enable people and organizations to become aware of and interact with others in away that takes into account each individual’s potential traumatic history. We will brieflydiscuss the history of…
