Barbara Bigelow recently met with Senator Elizabeth Warren to talk about clinical trials and to express her concerns about cancer research being held up by the government shut down and the current political environment.
Here's More Advocacy in Action
Getting the Most from SABCS
Webinar. How to Get the Most Out of SABCS. Oct. 29, 10:00 am PT, 1:00 pm ET, and on Nov. 3, 3:00 pm PT, 6:00 pm ET. Please join us for a conversation on getting the most out of the upcoming San Antonio Breast Cancer Symposium (SABCS). Whether you are joining in person or virtually,…
AI Primer for Advocates (Adiba Zeito)
ACE Meeting, Oct. 20, 2026. 3:00 pm PT, 6:00 pm ET. Learn about the terminology in artificial intelligence and how it is being applied. Adiba Zeito is the Founder and President of AICANcer Patient Advocacy Group, a patient-led 501(c)(3) non-profit organization dedicated to ensuring that AI in oncology is developed with equality, integrity, empathy, and…
ACE Merch is now now available!
Help us celebrate our sixth birthday with our first ever t-shirt fundraiser. There are a ton of color and size options – even tie dye (IYKYK) A variety of coffee mugs are available as well. You’ll be the coolest kid in your neighborhood with ACE swag and you’ll be supporting OUR organization.
Writing and Sharing Your Story: A Conversation with Wenora Johnson
Many advocates want to publish their personal stories, but often aren’t always sure where to begin. My advice is to start with your “why.” Ask yourself: Why do I want to tell this story? Is it to educate others, encourage early screening, influence research, or help another patient feel less alone? Your purpose will help…
A perspective on cancer advocacy from another discipline
“Ending Dementia Stigma could Change its Trajectory: Cancer’s History Shows Why” highlights the impact of cancer advocates from the perspective of the slow progress in the world of dementia research. This article by Saskia Sivananthan recently appeared in The Conversation. “Cancer did not change its stigma entirely because it became curable. It became curable faster…
The patient and public involvement toolkit (Cancer Research UK)
Cancer Research UK (CRUK) has prepared a toolkit to assist researchers in patient and public involvement (PPI), noting that PPI can improve the quality and relevance of the research, and help articulate its benefits for cancer patients and members of the public.
