A recent article in MedPage Today discussed the effectiveness of crowdfunding campaigns in meeting the out-of-pocket costs of cancer patients. While well-intentioned, the campaigns raised less than 5% of the out of pocket costs. “Our findings have clinical implications,” the authors wrote. “Discussions of expected cancer treatment costs with the oncology care team have long…
Location? Brookfield, CT via Maplewood, NJ and Memphis, TN but originally from Little Rock, AR What’s the primary focus of your advocacy? I try to use all the skills I have honed over the years to help others – relationships with KOLs, insight into pharma and biotech companies, and my passion for beneficial change which…
Our Fall Newsletter – our first newsletter – is now available! Please take a look to see our latests activities.
Luisa Fioretto, MD “As a medical student, I believed my role was to cure disease. However, after graduation, I found myself meeting people with all their burden of emotional and psychological complexity. While I was listening to them, I quickly realized that I was becoming part of their journey. In oncology, this became a personal encounter between…
Being a patient research advocate was never something Brittany Lee imagined for herself. After two cancer diagnoses, a debilitating muscle disease, and the loss of close friends, she discovered that advocacy was not only a way to process her own experience but also a way to change the future for others. More
Since its launch in 2011, hundreds of advisors/advocates have volunteered their time and expertise on committees, focus groups, storytelling panels and at events, providing crucial insights regarding the patient experience and how it can be improved at the Fred Hutch Cancer Center. More