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Crowdfunding Campaigns for Cancer Survivors mostly Fall Short
A recent article in MedPage Today discussed the effectiveness of crowdfunding campaigns in meeting the out-of-pocket costs of cancer patients. While well-intentioned, the campaigns raised less than 5% of the out of pocket costs. “Our findings have clinical implications,” the authors wrote. “Discussions of expected cancer treatment costs with the oncology care team have long…
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Advocate Spotlight: Donna Short
Location? Brookfield, CT via Maplewood, NJ and Memphis, TN but originally from Little Rock, AR What’s the primary focus of your advocacy? I try to use all the skills I have honed over the years to help others – relationships with KOLs, insight into pharma and biotech companies, and my passion for beneficial change which…
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Fall 2025 Newsletter
Our Fall Newsletter – our first newsletter – is now available! Please take a look to see our latests activities.
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Humanizing Oncology Care: A Strategic Imperative (Luisa Fioretto, MD in JCO Oncology Practice)
Luisa Fioretto, MD “As a medical student, I believed my role was to cure disease. However, after graduation, I found myself meeting people with all their burden of emotional and psychological complexity. While I was listening to them, I quickly realized that I was becoming part of their journey. In oncology, this became a personal encounter between…
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The Power of the Patient Voice in Research Advocacy (Huntsman Cancer Center)
Being a patient research advocate was never something Brittany Lee imagined for herself. After two cancer diagnoses, a debilitating muscle disease, and the loss of close friends, she discovered that advocacy was not only a way to process her own experience but also a way to change the future for others. More
