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Advocate Collaborative Partners with CSC to Recruit for Cancer Cachexia Study
The Cancer Support Community is conducting a study to understand the impact of cancer and cancer treatment on key physical activities. Advocates for Collaborative Education is helping to recruit for this important study. To participate in this study, you must: Visit www.surveycsc.org/ACE to learn more and to assess your eligibility. You will first be asked…
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An Advocate-led Study on treatment decisions for those with metastatic HER2+ breast cancer
Several of our Advocate Collaborative members have helped to design an anonymous survey on treatment choices for individuals with HER2+ metastatic breast cancer, regardless of hormone-receptor status, in the US. This study is being conducted by Drs. Adami and Papautsky at the University of Illinois Chicago and patient advocate, and Advocate Collaborative member, Martha Carlson….
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Advocates for Collaborative Education is now a 501c3
Following nearly four years of collaboration, the Advocate Collaborative has made the decision to incorporate as a non-profit organization. This decision was made after careful consideration for the pros and cons of what it means to incorporate and the challenges of seeking support in a challenging advocacy environment. But the facts were instructive. We are…
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“More Than A Diagnosis” Breast Data presented at SABCS23
A huge thank you to all who contributed their experiences and to all who shared with their networks. We shared data from the breast cancer subset of our first advocate-driven research at San Antonio Breast Cancer Symposium last week! Looking forward to publishing in other forums and to sharing the full all-cancers dataset in 2024. #SABCS23.

