Many advocates want to publish their personal stories, but often aren’t always sure where to begin. My advice is to start with your “why.” Ask yourself: Why do I want to tell this story? Is it to educate others, encourage early screening, influence research, or help another patient feel less alone? Your purpose will help…
ACE Meeting: Tuesday, April 7, 2026. 2:00 – 3:00 pm ET. Presentation by Annamaria Scaccia. Tips and lessons on how to partner with nonprofit cancer organizations to create, develop, and scale a patient-centered advocacy podcast. Annamaria Scaccia is an artist, award-winning journalist, and one-kidney bodybuilder who has survived both kidney cancer and thyroid cancer by…
ACE Meeting: Bioethics in Healthcare. Presented by Christina Sisti. March 19, 2026. 1:00 – 2:00 pm ET. Christina Sisti is committed to cancer advocacy, policy, and research. She has a Doctorate from Albany Medical College, specializing in Health Policy and Biomedical Ethics. Advocacy Engagement. Her role as a breast cancer patient and caregiver to her…
ACE Meeting Tuesday, March 10, 2026. Presented by Brad Powers. At the Cancer Patient Lab (nonprofit) and Navis Health (for-profit startup) we are helping cancer patients and caregivers navigate the medical system and complex testing and treatment decisions. Some (contrarian) beliefs we have developed include: – The standard of care won’t get you your best…
ACE Meeting. Thursday, March 7, 2026. Presented by Carolyn Taylor. Session focused on meaningful engagement of advocates and people with lived experience (PWLE). The presentation would focus on how PWLE can be embedded as credible contributors in cancer research and policy, and how that engagement can be measured to ensure it is meaningful, not symbolic….
Ace Development Director’s Claudia De Pasquale’s wonderful essay about breast reconstruction just appeared on the Living Beyond Breast Cancer Website.