ACE Meeting. September 3, 2026. 1pm ET, 10am PT. For patient advocates, LinkedIn can be much more than an online résumé, it can become a powerful Advocacy Portfolio. This presentation will explore how to intentionally transform your LinkedIn profile to reflect your lived experience, advocacy work, leadership, and impact. Participants will learn practical strategies for creating…
ACE Meeting. July 21, 2026. 6pm ET, 3pm PT. In this session, Steven Bidwell draws on three decades as both a performer and an oral cancer patient to explore the power of storytelling in advocacy. Using his own experience as a teaching tool, he introduces three practical techniques — the cold open, the vulnerability pivot,…
ACE Member Meeting. May 26, 2026. 6:00 pm. Pharma is big business structure. How to understand the layers, the emotional intelligence needed to navigate the waters, and the value you bring to the table. Where do you as an advocate fit into their big picture and how to maximize that well. Donna Short is a…
ACE Meeting. May 21, 2026. 1:00 pm ET. An introduction on who KENCO is, why KENCO was formed, a description of the model and it’s unique strengths, how it works, challenges, achievements and impact, and lessons for other countries. Prisca Githuka is a triple-positive breast cancer survivor and a passionate advocate for cancer awareness, survivorship…
ACE Meeting. May 19, 2026. 6:00pm ET. After cancer treatment, focusing on your overall wellness can help you feel stronger, regain control, and improve your quality of life. Many people experience side effects like fatigue, pain, stress, or trouble sleeping. Still, healthy habits such as eating well, staying active, taking supplements, and getting enough rest…
ACE Meeting. May 5, 2026. 6:00pm ET. Allison Rosen will cover the topic of clinical trial cooperative groups, starting with what they are, why they exist and the role advocates play in the various groups. I will briefly touch on the roles advocates play in these groups such as trials design, protocol development, consent and…