Clinical Trial Cooperative Groups & the Role of Patient Advocates: Improving Relevance, Access, and Outcomes in Oncology Research (Allison Rosen)

ACE Meeting. May 5, 2026. 6:00pm ET. Allison Rosen will cover the topic of clinical trial cooperative groups, starting with what they are, why they exist and the role advocates play in the various groups. I will briefly touch on the roles advocates play in these groups such as trials design, protocol development, consent and communication, recruitment and retention and oversight and dissemination and ways to get involved.

Allison Rosen is a passionate advocate for patients, communities, policy reform, and research, with a special focus on the adolescent and young adult (AYA) community. With over 19 years of experience in Oncology, Allison’s life took a dramatic turn at 32 when a colonoscopy revealed she had Stage 2C colorectal cancer. Twelve years later, cancer-free and thriving, she has committed herself to improving the patient experience. Allison actively volunteers on boards and committees, working to amplify awareness through social media, drive innovative outreach initiatives, and reshape how the healthcare system connects with the communities it serves. Her mission is clear: to use her voice and platform—both professionally and personally—to educate, advocate, and bridge the critical gap between patients and the healthcare system

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