Name: Hillary Andrews, PhD Location: Northern Virginia What’s the primary focus of your advocacy? Research advocacy – developing data that supports policies to get better drugs to patients faster as well as connecting advocates and patient advocates to improve research When and how did you get started? During my postdoc at Georgetown, my best friend…
Stacey Tinianov, Executive Director at Advocates for Collaborative Education, shared a post on LinkedIn by Advocates for Collaborative Education, adding: “Fabulous insights and guidance from this amazing team of advocates on how to build an advocate-centric research lab. Key items included: Read the entire post from OncoDaily.
How do you advocate? Are you compensated for your time? Where do your short and long-term advocacy interests lie? Advocates for Collaborative Education is interested in gathering a better understanding of the cancer advocacy community’s expertise, related compensation experience, current and future advocacy interests. We know that advocates are generally underutilized in research and definitely…
Name: Bob Riter Location: Ithaca, NY What’s the primary focus of your advocacy? Research Advocacy and Patient Support When and how did you get started? I was diagnosed with breast cancer in 1996. I became involved with the local cancer support organization (then known as the Ithaca Breast Cancer Alliance and later renamed as the…
Aafke Steenhuis was the featured quilter in this year’s Tompkins County (NY) Quilters Guild show. That ordinarily wouldn’t be mentioned on the website targeted to advocates in the cancer world. What’s noteworthy is that many of Aafke’s quilts relate to cancer, often depicting cancer cells with remarkable accuracy. It’s noteworthy that advocacy takes so many…
This workshop workshop provides a forum for collaborative and productive multidisciplinary discussions to advance the understanding of the regulatory and scientific issues surrounding the use of patient-reported outcome (PRO) measures in cancer clinical trials. Patient advocates Patty Spears and Jane Perlmutter and are among the presenters. Read the description with agenda and speaker biographies attached