How do you advocate? Are you compensated for your time? Where do your short and long-term advocacy interests lie? Advocates for Collaborative Education is interested in gathering a better understanding of the cancer advocacy community’s expertise, related compensation experience, current and future advocacy interests. We know that advocates are generally underutilized in research and definitely…
Name: Bob Riter Location: Ithaca, NY What’s the primary focus of your advocacy? Research Advocacy and Patient Support When and how did you get started? I was diagnosed with breast cancer in 1996. I became involved with the local cancer support organization (then known as the Ithaca Breast Cancer Alliance and later renamed as the…
Aafke Steenhuis was the featured quilter in this year’s Tompkins County (NY) Quilters Guild show. That ordinarily wouldn’t be mentioned on the website targeted to advocates in the cancer world. What’s noteworthy is that many of Aafke’s quilts relate to cancer, often depicting cancer cells with remarkable accuracy. It’s noteworthy that advocacy takes so many…
This workshop workshop provides a forum for collaborative and productive multidisciplinary discussions to advance the understanding of the regulatory and scientific issues surrounding the use of patient-reported outcome (PRO) measures in cancer clinical trials. Patient advocates Patty Spears and Jane Perlmutter and are among the presenters. Read the description with agenda and speaker biographies attached
This is an excellent and clear description of genetics vs genomics in the cancer world. “In this episode of the No One Missed: Biomarker Testing in MBC series, watch Jenny Burkholder, patient advocate and podcast host, discuss the concept of precision medicine with Dr. Mehta, MD, of MD Anderson Cancer Center, the essential differences between…
Rose Kushner a Maryland journalist and mother — was consistently certain her next article would be her breakthrough piece. She never dreamed it would be breast cancer that made her and her work known to the world. Author of seven books on the topic of breast cancer, Kushner’s work affected changes in laws and medical…