The varied activities of ACE Members
What do advocates do?
That’s not an easy question to answer because we’re all so different and we’re engaged in such a wide range of activities.
Over the months ahead, we will highlight our members and these these different roles.
Our goal is to help new advocates understand some of the possibilities to help get them started in their own advocacy careers.
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Writing and Sharing Your Story: A Conversation with Wenora Johnson
Many advocates want to publish their personal stories, but often aren’t always sure where to begin. My advice is to start with your “why.” Ask yourself: Why do I want to tell this story? Is it to educate others, encourage early screening, influence research, or help another patient feel less alone? Your purpose will help…
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Claudia De Pasquale makes herself whole with reconstruction choices (from Living Beyond Breast Cancer)
Ace Development Director’s Claudia De Pasquale’s wonderful essay about breast reconstruction just appeared on the Living Beyond Breast Cancer Website.
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From Isolation to Impact: How Allison Rosen Became the Voice Young Cancer Patients Needed (Tim McDonald’s interview with Allison Rosen)
This is a terrific interview and article about Allison Rosen, ACE’s Communications Co-Director, by Tim McDonald in his series “Advocacy at Work.”
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Mary Pat Berry: “A pattern in my life is to address issues with direct action.”
Advocacy and breast cancer are not new words in my vocabulary. When I was thirteen, my mother was diagnosed. In those years, cancer isolated my mother from her friends and acquaintances as then the belief was that it was like polio and likely contagious. My high school and college years were very different than those…
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When Service Becomes Legacy: My Story of Family, Cancer, and Purpose (Wenora Johnson)
ACE member Wenora Johnson recently published a powerful article When Service Becomes Legacy: My Story of Family, Cancer and Purpose. in Cancer Community. “Veterans are trained to ‘tough it out,’ to put mission first and themselves last. Preventive care often takes a back seat. We need stronger outreach in the veteran community to make it…
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Finding Your Lane: How JJ Singleton Turned Survival into Impact and Changed the Face of Cancer Advocacy
Tim McDonald (an advocate himself) conducted this terrific interview with colorectal cancer survivor JJ Singleton. The article originally appeared in Tim’s substack and caught our eye.





